Things have not, unfortunately been straightforward in the last 24 hours.
We were woken at 2am by the Neonatal Unit asking us to come in as they were going to perform the tracheostomy on Max as a matter of urgency. When we got there the ENT surgeon was there and discussing things with the various doctors and nurses and they decided that their primary concern wasn’t the tube in his throat, as it was in the correct position, but the fact that the hole in his lungs was seeping air into his body and that the drains were failing to get rid of it. They inserted a new drain and got it draining some of the air, but his breathing was still not settling well. He seemed stable so we left at around 4.30 am. We came home and tried to sleep only to be woken at 6 am asking us to go in to talk to the doctors. The decision was made to perform the tracheotomy as his breathing was too unstable to maintain properly.
Continue reading “Up & down”