Yesterday Massimo went into theatre to have his trachy tube changed (this will happen weekly or monthly from now on – but they like to get the ENT surgeon to do the first change in controlled circumstances!). He now has a variable tube which they have adjusted (actually shortened would be more accurate – twice) but which fits much better than the one they put in last week.
The nurses have told me that he has been very settled since last night and that his breathing has improved. Hopefully this means that he will be tried on the CPAP again soon (the assisted breathing). Every improvement in his breathing brings him closer to being able to be picked up, something we are still waiting to do.
He has been much more alert since they stopped his paralysing medicine and he has been moving his arms and legs and really gripping quite strongly. He opens his eyes when you talk to him (if he feels like it!) and he has put on a bit on weight since his birth (about 100g).
Tomorrow they are hoping to do another EEG to check his brainwave activity and we should be having a long chat with the doctors. We will update you again, but probably not until Monday.