Photos

We recently had a proper photo session done with the children, and I thought it may be a good opportunity to add a new entry.
There aren’t that many there, I tried to be sensible, but there are a few shots of each of the children. View these here.

A quick update on Max: he is now in Year 2 at Fircroft Primary School, a mainstream school around the corner from here. He is clearly behind his peers but is doing incredibly well. His biggest hurdle is his lack of speech and a lack of vocabulary in his signs. This is as much due to our lack of knowledge as a difficultly in finding out what the signs are! We are moving onto sign assisted English which uses BSL signs which should make the finding and teaching of signs much easier. His handwriting is coming along slowly (he still shows a lack of control in fine motor skills) as is his reading – as you can imaging learning to read for him is very tricky! – so eventually we hope that all this will assist his ability to communicate.

On a medical front, he has developed seizures of some sort that are not epilepsy, but more apnoeas, where he just seems to forget to breathe. He is on medication that seems to be controlling them quite well. His tumour is still there but now very much a mass rather than anything else. It has not grown for some time and is slowly becoming proportionately smaller but the change is very slight and there is no probability of anything major changing with his airway management. As he has grown, he has had many less chest infections and breathing problems. We have just been through a bout of chicken pox for all of them and he came through that just like any other 6 year old boy, except he complained much less than his brothers did!