This morning we had an appointment at 10.00 am with the surgeon who will be performing the gastrostomy on Massimo. The surgeon would like to wait for Massimo to be a little bigger before he performs the operation and suggested the week of the 20th May which is when he returns from his holidays. Massimo is due to have the ENT specialist investigate his windpipe at around that time and so it has been decided that the two doctors will organise to do both under the same anaesthetic, date to be confirmed.
This afternoon I met one of the community nurses who will be caring for Massimo when he comes home. Her name is Helen and her job will be to ensure that we are equipped with all the know-how that we will need as well as all the equipment. She is an extremely nice lady and Massimo’s homecoming date will eventually be largely up to her. She is coming round to the house tomorrow afternoon and she will bring some of the equipment we will need with with her. It is all very exciting, but we don’t yet have a date or any real idea of when Massimo will be home. It could take up to 3 or 4 weeks and it will certainly not be in the next week.